Category: Texas HHSC

Radio spot – Info on Duchenne

Tomorrow morning at 8:00 on KPFT 90.1 Open Journal. Lindy Fillis (mom to Ditri age 5) and Erin Bullers (mom to Nicholas age 12) will be doing an interview from 8:25 to 8:55 explaining  Duchenne MD, upcoming Cure Duchenne Cares event taking place on Friday and Saturday, and  resources for families. They will also share with the audience on how they can help the Duchenne community with the critical adcom coming up on April 25th with the FDA. Although etepliresen only helps 13% of  Duchenne boys, it will pave the way for future drug approval.
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> You can urge your Senators to Sign a letter to the FDA. The link to do that is:
> https://secure2.convio.net/ppmd/site/Advocacy;jsessionid=6DF790174F62817DB1ACBEA5BA987A72.app227a?cmd=display&page=UserAction&id=225
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New Instagram

Hello all,

I just created an Instagram account for Autism_Atty.  If you have an Instagram account for you and your loved one with a disability, look me up. I would love to see your lives through pics!

Leona

7th Annual Camp & Resource Fair 2/6/2016

Memorial Drive United Methodist Church &
Mikey’s Place present:
7th Annual Camp & Resource Fair

Saturday, February 6, 2016
9:00 a.m. – 1:00 p.m.
Memorial Drive United Methodist Church
12955 Memorial Drive; Houston 77079
 Meet camp providers and other organizations listed in Mikey’s Guide.
 Attend special presentation by United Healthcare.
 Purchase your copy of the new Mikey’s Guide, 2016 edition.
 Valuable resources for most ages and disabilities.
 Fun Kids’ Area! Bring the whole family!
 Door prizes for parents who participate in focus groups.
 Complementary hot chocolate and popcorn.

A fun time for all! Great info for families! Meet new friends and old!
For more information, please visit www.mikeysplace.net or call 713-591-1965.

Special Needs Conference in January

I am looking forward to the conference in January called “Tapping into State and Private Resources to Reach Transition Age Prepared!”

Location: Cypress United Methodist Church 13403 Cypress North Houston ~ Cypress, TX 77429

My presentation is on Medicaid Waiver Programs.

Click on the link below for more details.

http://www.seas-special-education-assistance-services.org/conference-registration

 

Medicaid Waiver Programs

Years ago, I had been advised by my son’s therapist to get my son on the Interest Lists for the Medicaid Waiver Programs, but all I heard was “Medicaid” and I tuned her out. Whether my decision was based on pride or ignorance, I failed my son.

In November 2014, during a holiday break I had time on my hands and decided to make the calls to investigate the Programs.  If you have a disabled child, I strongly suggest you make the calls today.  There are 6 programs I am familiar with – CLASS, HCS, TxHml, CBA, MDCP, and DBMD.  The information regarding the disabled individual you will need to have ready  is the Social Security Number, last name, first name, middle initial, county of residence, date of birth, whether the individual receives Medicaid, mailing address, phone number, your name, the diagnosis, and the length of time of the awareness of the disability.

I called DADS at (877) 438-5658. My son is now on the Interest Lists for CLASS and MDCP.  The call took 8 minutes of my time, but the wait will be years.

A month later my son was added to the HCS Interest List. The wait is 10 to 12 years.

Warning: If you get on the lists, don’t forget to call the agencies when you move – you miss your letter notifying you of your meeting,  you lose your place in line.

-LEF