Tomorrow morning at 8:00 on KPFT 90.1 Open Journal. Lindy Fillis (mom to Ditri age 5) and Erin Bullers (mom to Nicholas age 12) will be doing an interview from 8:25 to 8:55 explaining Duchenne MD, upcoming Cure Duchenne Cares event taking place on Friday and Saturday, and resources for families. They will also share with the audience on how they can help the Duchenne community with the critical adcom coming up on April 25th with the FDA. Although etepliresen only helps 13% of Duchenne boys, it will pave the way for future drug approval.
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> You can urge your Senators to Sign a letter to the FDA. The link to do that is:
> https://secure2.convio.net/
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Category: Event in Greater Houston area
Happy Easter!
I love Texas bluebonnets at Easter time. Below I am sharing my favorite Easter picture of Jonathan so far.
Cure Duchenne Cares Workshop April 9th
April 9th at 1:15 pm, Leona E. Filis will be speaking about legal issues, including Special Needs Trusts, Wills, and Medicaid Waiver Programs – specifically C.L.A.S.S.
For more DMD Workshop information, go to cureduchennecares.org
Katy Autism Support Presentation 4/19
I am excited about my next official speaking engagement! I have been invited to speak at the April meeting for Katy Autism Support.
Support Meeting April 19th, 2016; Special Needs Attorney presentation.
Leona E. Filis, attorney and mother of a child on the autism spectrum will discuss how families with children with special needs can gain more knowledge and information about Special Education Law, Family Law,Probate/Trusts, Guardianship and Medicaid Waivers. Her law practice focus is on the legal services of families with children with special needs. Full description of Ms. Filis’ presentation will be updated as the meeting date approaches.
Date: Tuesday, April 19, 2016
Time: 7:00—9:00 PM
Location: St. Peter’s United Methodist Church, Asbury Hall, 1st floor, 20775 Kingsland Blvd., Katy, TX
If you have any questions, please send an email to Cynthia Reece at kgreeceman@aol.com.
Free childcare is available, RSVP the special needs ministry coordinator at sarahmorrison@sbcglobal.net for childcare no later than Sunday, April 15, 2016.
Conference March 5th
The 11th Annual Conference Resource Fair Saturday March 5th
Come visit the BMK booth to get information about estate planning, including Special Needs Trusts and wills tailored to address the needs of your family. For more info about BMK go to www.bmkpllc.com
The HCC campus in Spring Branch at 101 Sam Houston Parkway will be the place to be on Saturday March 5th. Free entry for the those who register early
Register On-line January 11th – February 26th at:
http://11thannualconferencespecial2016.sched.org/
For more information, call Family to Family Network at 713-466-6304
Success at the Resource Fair at Memorial Drive UMC
8:30 am is really early to be setting up at a resource fair on a Saturday but we did it! I felt like I was losing my voice around noon because of all the talking I was doing but it was worth it. GinLeo shared information with parents for hours on the importance of getting their kids with special needs on the Interest Lists for Medicaid Waiver Programs, and all of the benefits and therapies that can benefit their children. I saw family members, old friends, and made new friends.
Added bonus – I got a free copy of the 2016 Mikey’s Guide – A Resource Guide for Families with Children, Teens or Adults with Disabilities.
Now I am on the hunt for the next conference. 
Breaking Barriers Conference
Well the Breaking Barriers Conference was a success! Many parents attended this conference to learn about resources for children with disabilities and to share common experiences. For my early morning presentation, we discussed the importance of getting children with disabilities on the Interest Lists for Medicaid Waiver Programs, regardless of the parents’ income. Also, the vendor table for GinLeo had a nice flow of traffic from therapists and parents interested in receiving therapy for their children who receive benefits from the C.L.A.S.S. program. For more information on GinLeo go to http://www.ginleoinc.com.
Sensory Friendly – Movies at Santikos – 1st Saturday of every month
Gina Mouser Presentation for Parents with nonverbal autistic children
My family has benefited for years from Gina Mouser and her natural ability to connect with autistic children and her advise to adjust environments and parents’ actions. She is offering a free presentation called “Teaching Functional Communication & Reading skills” (Specifically those who are “non-verbal”) on Wednesday, July 15, 2015 at 6:00 pm. Please RSVP by July 10, 2015 to ginaam@sbcglobal.net.
Saturday May 30th Safety Class
Call Houston Karate at 713-464-7937 to sign up for the Self Defense & Restraining Without Injury Seminar. This is a very unique opportunity!
At Houston Karate Academy, the instructors offer a weekly class for children with disabilities. I have enjoyed watching my son attend classes and earn a white belt with a black stripe.
I highly recommend Houston Karate Academy.
Leona