Success at the Resource Fair at Memorial Drive UMC

8:30 am is really early to be setting up at a resource fair on a Saturday but we did it! I felt like I was losing my voice around noon because of all the talking I was doing but it was worth it. GinLeo shared information with parents for hours on the importance of getting their kids with special needs on the Interest Lists for Medicaid Waiver Programs, and all of the benefits and therapies that can benefit their children. I saw family members, old friends, and made new friends.

Added bonus – I got a free copy of the 2016 Mikey’s Guide – A Resource Guide for Families with Children, Teens or Adults with Disabilities.

Now I am on the hunt for the next conference.

GinLeo Advanced Special Services, Inc.
GinLeo Advanced Special Services, Inc.

Breaking Barriers Conference

Well the Breaking Barriers Conference was a success! Many parents attended this conference to learn about resources for children with disabilities and to share common experiences. For my early morning presentation, we discussed the importance of getting children with disabilities on the Interest Lists for Medicaid Waiver Programs, regardless of the parents’ income.  Also, the vendor table for GinLeo had a nice flow of traffic from therapists and parents interested in receiving therapy for their children who receive benefits from the C.L.A.S.S. program.  For more information on GinLeo go to http://www.ginleoinc.com.

Breaking Barriers Conference 2016
Breaking Barriers Conference 2016
At Breaking Barriers Conference 2016
At Breaking Barriers Conference 2016

 

Thank you U.S. Senate for the RAISE ACT

The RAISE ACT was introduced by U.S. Senator Susan Collins (R-ME) and Tammy Baldwin (D-WI) earlier this year. Now the legislation is on its way to the House.

“I applaud the Senate’s move to advance the bipartisan RAISE Family Caregivers Act forward, and I’m proud of the widespread support, nationally and in Wisconsin, that this critical, bipartisan bill has received,” said Senator Baldwin. “In so many instances, family caregivers put their own health, livelihoods and financial security at risk to tend to the needs of their loved ones, many of whom require full-time assistance and care. If we are serious about ensuring that our older adults and loved ones with disabilities receive the highest quality care in their own homes, we must formally recognize and support family caregivers. The bipartisan RAISE Family Caregivers Act creates a national strategy and plan to assist family caregivers. This effort is especially personal to me as I was raised by my maternal grandparents and later served as my grandmother’s primary caretaker as she grew older, and I will continue to work to ensure that everyone has access to the care and assistance they need and deserve.”

“Our family caregivers are an invaluable resource to our aging society,” said Senator Collins. “As our aging population continues to grow and the need for round-the-clock care for our seniors increases, uncompensated family caregivers will continue to be the most important source of support for people who need long-term care. At some point most of us will likely either be family caregivers or someone who needs one. The RAISE Family Caregivers Act will launch a coordinated, national strategic plan that will help us to leverage our resources, promote innovation and promising practices, and provide our nation’s family caregivers with much-needed recognition and support.”

Gina Mouser Presentation for Parents with nonverbal autistic children

My family has benefited for years from Gina Mouser and her natural ability to connect with autistic children and her advise to adjust environments and parents’ actions.  She is offering a free presentation called “Teaching Functional Communication & Reading skills” (Specifically those who are “non-verbal”) on Wednesday, July 15, 2015 at 6:00 pm.  Please RSVP by July 10, 2015 to ginaam@sbcglobal.net. 

Freudianism does not “fix” autism

As I drove away from my son’s school this morning after dropping him off over half an hour after the late bell, I had my customary call with my mother.  Irritation level being red, I attempted to remain calm as she asked questions about my son’s morning.  “Is he sick?” “Did he sleep okay last night?” “He knows it is show-n-tell today, why did he stall getting ready for school?” Such questions led to other questions about earlier inappropriate behavior. “His teacher said that yesterday the only problem they had with him was about his gloves. Why does he feel like he needs to wear them in school all day?”

At that point I imagined my 7 year old son on a couch, in a semi-dark room, with an old man wearing a brown tweed jacket sitting nearby with a pad and pen in hand.  Not necessarily Freud himself, but some psychoanalyst with good intentions trying to figure out why my son does what he does.  That is when I stopped my mother and said “Freudianism does not fix autism.”

Of course, learning why my son exhibits a certain behavior should be analyzed, but I have learned to redirect the focus of the question.  The focus should not on the gloves themselves and what they represent to my son as a symbol of some sort.  The focus should be on what it is in his environment that is possibly agitating him or causing anxiety so that he seeks out to be soothed by wearing his red gloves.  By the way it a hot April in Texas so cold hands are not the answer. Will I ever know the answer as to why my son disrupted his class yesterday by wearing his red gloves? Of course not. Can I live with that and move on? I have to.

 

Around Houston March 2015

There are many events in the Greater Houston Area that families with disabled children can participate in for fun or for support.  The following information is provided for your information, and is not an endorsement. If you attend, please provide feedback.

SatMar 14
9:00 AM
at Texana Children’s Center for Autism – Sugar Land